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“Macrophages.” His expression was smug. “I’ll never forget the macrophages.” We had just had a discussion about memory and how things learned since the attack fail to stick unless he uses them.
“But you remember macrophages.”
“Of course! That was important!” The macrophages are his talisman. He brings them up every time. My son has acquired an uncommonly good knowledge of physiology through his determination to recover. He also has the impression I am a walking Wiki-thesaurus. I suppose from his perspective I am a bit of a dinosaur … and I hope to God he doesn’t read this or I’ll have another new nick-name…
Every so often though, I surprise him. The macrophages were one such moment when, to his delight, I didn’t know the answer. For the past three years they have come up fairly frequently, as they did the other day in one of the odd conversations that we share. I’d been explaining the anatomy of his dishwasher to him, its innards being pretty much a mystery to him.
“…but you know what the ‘trap’ is in anatomy?” My puzzled expression lit his face with something approaching beatitude. It fell again as I answered,
“Trapezoid.”
“Just for a minute I thought I had you… you had to go and spoil it…” The mock glum expression descended and that’s when he started muttering about his beloved macrophages.
It is surprising really, given the level of brain injury that Nick sustained back in 2009, that he can even enunciate the word, let alone have an intelligent conversation about these particular cells. Even more surprising, on the face of it, that he can remember their name and function. But, as he said, they are important … one of his cherished victories… and so he has stored the memory in what you might see as a top level file. Details of other things often slide into obscurity… recent memory is one of the very few blips that remain in Nick’s mind from the injury.
We are in a rare position where many things are concerned. Most of us take our minds, senses and bodies for granted. We know that some of those senses may fade as we age and we accept that as an inevitable part of getting older. We even accept that the memory does odd things as we age. Nick, on the other hand, woke from the coma paralysed, mute and with both his hearing and sight impaired. The thought processes of his quicksilver mind were slow and laboured, his memory disorganised and unreliable, the prognosis appalling.
His recovery has been damned near miraculous, brought about largely through an utter determination to defy every negative prediction. His mind and his wit are, to all outward appearances, as sharp and as quick as ever. The only visible problems relate to his reduced mobility and those he continues to address on a daily basis with a dedication that has to be seen to be appreciated.
The invisible scars are a different matter. Though minimal in functional terms in comparison to what they were, there are still areas, such as his sight and his memory, where Nick himself can see the problems even if others do not see them. We have learned to watch memory working and understand how things that have an emotional resonance and relevance are filed at the ‘top’ level, whilst minor or bland details are buried in the depths.
Bodies have memory too and much of Nick’s physical recovery is based around repatterning, reminding the neurological and physical connections of what they once knew. It is odd that things we have not done in a very long time… like that first waltz in decades or riding a bicycle… come back easily once we allow the body to move into them, even if we believe we have forgotten how…
You can see this yourself as you look back on your life so far. The highlights that spring to mind are all rooted in emotion. We seldom remember the grey moments, but the times of joy and sadness stand out. Those we recall first. Other times come back as we delve, almost by an emotional ranking based on intensity, whether good or bad.
It occurred to me that most of us spend most of our time simply moving through a monochrome life of vague emotions shaped by routine, habit and duty. There are few spots in most days where we are conscious of a strong enough emotion to forge a first level memory. Others… second level recollections… seem to need a trigger to bring them back to the surface of the mind. The vast majority of our lives as we have lived them slips into utter oblivion, buried so deep that recalling those moments becomes nigh impossible.
Having seen first-hand how easy it is to lose so much in a single split second of a horror beyond our control, I was obliged to take stock of how I was filling the filing cabinets of my own memory. It was a wake up call, long before I began to understand the process. Literally a wake-up call… the intensity of those first days was raw and terrible. But those days are etched in sharp relief in memory.
I never want to feel that way again. But I realised I did want to live my life with that level of passion. I wanted to be alive while I live. Perhaps, after all, it is no so strange that it was from this point my own life began to change. External events seemed to take a hand and unfold to bring me to the School and the life I live today. Nor is it coincidence that I work with a school whose techniques seek to bring vividness to everyday life.
Both our conversation and my reverie were brought to a halt by a delivery arriving. As I unpacked my son’s purchases he explained that he had bought them for a joke… a set of Nunchaku, way too lightweight to be used for anything else. Except, they proved to be a trigger for a memory I had buried deep enough to need the reminder of their physical presence in my hands.
I wandered out into the garden with my son watching from the door to see what I was up to. He laughed as I took the jacket off, realising what I was at, and folded his arms in preparation for enjoying the opportunity to heap ridicule upon his mother. He stopped laughing and I watched in, I admit it, unholy glee, as his face went through every stage of shock and horrified disgust as I swung the nunchaku with a 30 year old skill I had, apparently, not entirely forgotten. Once upon a time I had made myself a set and taught myself to use them as part of my morning meditation… the body does not need to be still for the mind to fly free.
“You can’t do that!” he said as I passed the chained sticks around my body.
“Why not?” Being an evil hobbit I could only grin at his crestfallen face.
“Cause you’re my Mum!”



























Reblogged this on oshriradhekrishnabole.
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A very illuminating post Sue. Love to you and Nick and I agree completely on your comment about memory…
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Thank you, Olga. Hugs x
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Reblogged this on Anita & Jaye Dawes.
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A wonderful post. I had seen the occasional reference to your son and a wheelchair but hadn’t known the back story untl this morning and I read the post you’d linked to when your son was injured. What an amazing story and I hope he continues to make progress.
Isn’t it funny, how kids put parents in boxes with labels about what they can and can’t do? I remember as a child being astounded when my mother borrowed a pair of ice skaes and skated off over a frozen loch – who knew? Then when my son was little he was equally astounded when I hopped on a pair of stilts – in public – and walked around.
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Oh I love it when their faces sort of melt in disapproving horror at the fact we have lived and learned stuff 🙂
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Very powerful. Thank you for sharing so much of yourself, and for the reminder of the specialness of every day.
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🙂 Each day can be special… if we let it 🙂
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Isn’t it wonderful when we can surprise our kids who are sure they know everything there is to know about us? Such a treat, just the look on the face.
Life has been all about calamities, crises, life, and death for a long time here. Not like what you went through because that was your child which brings it to a higher level and a new dimension.
35 years ago, my son nearly died of vitamin A poisoning, the result of a never-detected or suspected congenital inability to process vitamin A. I remember less of a heightened state than a blankness, a robotic trance. He survived, I survived, and there have been so many more crises since …
I’m sure I’m irrevocably changed, but I’m not sure how.
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These things do change us and though it may feel like it is fr the worst at the time, I think there are so many opportunities for learning and growth in such situations it is impossible to see only the negatives if you can rise beyond the fear.
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Now you have to tell us what nunchaku’s are?? His recovery is a miracle! Your love has encouraged that healing!! We do take a lot for granted in life, don’t we?? May he continue to excel in everything he does!!
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Think Bruce lee with the chained sticks 🙂
And my son, apparently, has been moved to write a poem about the whole affair. I dread to think … 😉
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Your son’s recovery is a miracle and certainly the result of both your and his determination and will to live to the best extent possible. Now as for macrophages, they are right up my alley, having taught histology for many years!
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Oh now, Noelle, I have heard more than enough about those ruddy macrophages 😉
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Thanks for sharing your joys after such an long journey to recovery! Blessings on you both
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Thank you. It has all kept us on our toes
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Delightful – always love it when we can one-up one of the kids! 😉
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He has, apparently, written a poem about it… 🙂
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Thank you, Sue, for sharing – as one who has recovered enough from a stroke to “look back to normal” to those around me, but who still struggles to “feel like the paths have been rebuilt” it was very comforting to find yet another story of another rebuilder! Thank You !
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Nick is a constant reminder that many things which seem impossible can be achieved… and many things are not what our snap judgements based on surface impressions might assume. Hugs xxx
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